About Our Event
Join Hunter syndrome families, clinicians, therapists, educators, and other supporters in our second annual Hunter Syndrome Family Fair. Enjoy a variety of speakers, interactive workshops, and a resource expo! This event is free to anyone connected to the Hunter syndrome community, including all other MPS community members.
Event Details
Project Alive's Hunter Syndrome Family Fair is all about the MPS II community! This event is free for all MPS II community members. Physicians, therapists, educators, genetic counselors, and other professionals working within the MPS II space are welcome to attend.
What is happening at this event?
- Speaker sessions focused on Hunter syndrome
- Interactive workshops
- Free kid's camp
- Resource expo
- Family connection
- Breakfast and lunch will be provided
- The WonderFall Family Festival will be held after this event. Please register for this event here:
Room Block:
Project Alive has a room block at the conference hotel, the Westin Dallas Stonebriar Golf Resort & Spa.
Please use this link to book your room using our group rate: Book your room here.
Scholarships:
There are a limited number of scholarships available. Scholarships will cover air fair/mileage, taxi fees, and two night hotel stay for up to 4 people within the same household. Travel arrangements can be reimbursed, or Project Alive can book them for you if paying upfront would cause financial burden. Scholarship awardees will need to attend one meeting with Project Alive to establish all travel arrangements, sign an award letter, and confirm receipt of award email by the deadline. Applications are due by July 15, 2024. If you are not selected for the scholarship, you will be placed on the waitlist in the event there is a cancellation or additional funding is obtained by Project Alive. Priority will go to families with the most financial need, families that are newly diagnosed, and families that have not attended a MPS conference in over 5 years.
Complete the scholarship application here.
Contact us:
give@projectalive.org
Agenda
Agenda
7:00 am - 8:00 am Check in, breakfast, networking, expo
7:30 am - 2:00 pm Kid's Camp Opens
8:00 am - 8:45 am Community Fireside Chat
8:45 am - 9:30 am CPR Workshop
9:45 am - 10:30 am Neuroplasticity Workshop
10:45 am-11:15 am Hunter Syndrome Tips & Tricks by Experienced Parents
11:15 am-12:00 pm How to Tell Your Story
12:00 pm -1:00 pm Lunch
1:00 pm - 2:00 pm Accommodations in School, An Expert Panel
2:00 pm CST Closing
Sponsors
If you are interested in sponsoring this event, please visit https://projectalive.org/eventsponsorship for more information or email us at give@projectalive.org.